Pulmonary Fibrosis NII'm Newly Diagnosed

Learn MoreI'm Newly Diagnosed.


Everyone experiences a diagnosis of pulmonary fibrosis differently. However you are feeling, you are not alone, we have information and support to help. To start the word “pulmonary” means lung and the word “fibrosis” means scar tissue— similar to scars that you may have on your skin from an old injury or surgery. So, in its simplest sense, pulmonary fibrosis (PF) means scarring in the lungs. Over time, the scar tissue can destroy the normal lung and make it hard for oxygen to get into your blood. Low oxygen levels (and the stiff scar tissue itself) can cause you to feel short of breath, particularly when walking and exercising. Pulmonary fibrosis isn’t just one disease. It is a family of more than 200 different lung diseases that all look very much alike. The PF family of lung diseases falls into an even larger group of diseases called the interstitial lung diseases (also known as ILD), which includes all of the diseases that have inflammation and/or scarring in the lung. Some interstitial lung diseases don’t include scar tissue. When an interstitial lung disease does include scar tissue in the lung, we call it pulmonary fibrosis.

IPF is a form of interstitial lung disease, primarily involving the interstitium (the tissue and space around the air sacs of the lungs), and not directly affecting the airways or blood vessels. There are many other kinds of interstitial lung disease that can also cause inflammation and/or fibrosis, and these are treated differently. It is important to work with your doctor to determine if you have IPF or another form of interstitial lung disease.

Learn MoreWhat causes my Pulmonary Fibrosis?



Image

Genetics

Up to 20% of people with IPF have another family member with an interstitial lung disease
Image

Gender

Male genetics have a large part to play. Approximately 75% of patients with IPF are male
Image

Smoking

Approximately 75% of people with IPF are current or previous cigarette smokers.
Image

Age

Research across the UK and rest of the world shows almost all patients with IPF are over the age of 50 years

In DepthFind out more detail.

Read More

Typically called hypersensitivity pneumonitis (HP) or chronic hypersensitivity pneumonitis. HP occurs when the lungs react with inflammation and scarring after breathing in mold spores, bacteria, animal proteins (especially from indoor or caged birds), or other known triggers. No one is certain why some people are so susceptible to developing HP and others are not.

Help Fundraise for PFNI

Help Today with a single Donation

Set up a Regular Donation

Sign up for our Newsletter

Join our Facebook Group

Organise a Fundraising Event

Learn MoreSymptoms of Pulmonary Fibrosis.



Image

Shortness of Breath

The most common symptom of pulmonary fibrosis is shortness of breath
Image

Loss of Appetite

With a lack of Oxygen, sufferers may start to experience less desire to eat and weight loss follows
Image

Dry Cough

One of the most common symptoms of pulmonary fibrosis is a dry, persistent cough
Image

Fingertips

Clubbing is a thickening of the flesh under the fingernails, causing the nails to curve downward

VideoLife with Pulmonary Fibrosis.

Learn MoreInfromation for newly diagnosed patients.


Pulmonary Fibrosis NI (PFNI) has created information booklets to provide useful advice and knowledge about the medical condition. We suggest that you download and browse through these booklets, where you can find up-to-date facts about Pulmonary Fibrosis presented in a simple and informative way. PFNI's booklets provide detailed information about the diagnosis of Pulmonary Fibrosis, treatment options and support services available. They also provide advice on how to cope with daily living such as eating healthy and maintaining a social life while dealing with the condition.

Managing Breathlessness

View or Download our PDF booklet on Managing Breathlessness with Pulmonary Fibrosis

Mental Wellbeing

View or Download our PDF booklet on Mental Wellbeing Issues with Pulmonary Fibrosis

Oxygen Information

View or Download our PDF booklet on effective use of Oxygen with Pulmonary Fibrosis

General Advice

View or Download our PDF booklet on general advice with coping with Pulmonary Fibrosis

PF General Introduction

View or Download our PDF booklet on our Introduction to living with Pulmonary Fibrosis

Anti Fibrotic Drugs

View or Download our PDF booklet on Anti Fibrotic Drugs for Pulmonary Fibrosis

VideoLife with Pulmonary Fibrosis.

Learn MoreRelaxation Tracks.



Introduction to Relaxation

View or Download the mp3 audio file to help with Pulmonary Fibrosis

Breathing Technique

View or Download the mp3 audio file to help with Pulmonary Fibrosis

Square Breathing

View or Download the mp3 audio file to help with Pulmonary Fibrosis

Passive Relaxation

View or Download the mp3 audio file to help with Pulmonary Fibrosis

Visualisation of a Beach

View or Download the mp3 audio file to help with Pulmonary Fibrosis

A Country Walk

View or Download the mp3 audio file to help with Pulmonary Fibrosis

The Garden

View or Download the mp3 audio file to help with Pulmonary Fibrosis

A Safe Place

View or Download the mp3 audio file to help with Pulmonary Fibrosis

Mindfulness of the Breath

View or Download the mp3 audio file to help with Pulmonary Fibrosis

Body Scan

View or Download the mp3 audio file to help with Pulmonary Fibrosis

Join UsBecome a member today.


Find out More >