Pulmonary Fibrosis NII'm Living with PF

Learn MoreLiving with Pulmonary Fibrosis.


Over 70,000 people in the UK are living with pulmonary fibrosis. We have the information, support and stories to help you live a healthier life with pulmonary fibrosis. There is no cure for PF and there are currently no procedures or medications that can remove the scarring from the lungs. Treatments are used to slow progression of the lung scarring, and may not necessarily lessen the symptoms of cough and breathlessness. Pirfenidone (Esbriet) and Nintedanib (OFEV) have both been shown to slow the progression of PF; however, some patients cannot take these medications due to their side effects. These medications are not approved for use in other interstitial lung diseases.

Some additional medications can be used to improve the symptoms of IPF, such as shortness of breath and cough. This includes treatment of Gastro-oesophageal reflux disease (GORD) with anti-acid therapy and treatment of shortness of breath with opioids (a class of medications that includes morphine). Other treatments include supplemental oxygen, pulmonary rehabilitation (exercise training, education and support for people with chronic lung disease), and lung transplant.

Learn MoreTreatments for Pulmonary Fibrosis.



Image

Medications

Drug therapy for pulmonary fibrosis is often specific for the type of PF a patient has. Many medications exist and are available in NI 
Image

Oxygen

Oxygen is is normally prescribed by the Specialist Respiratory Nurse as required 
Image

Lifestyle changes

It is imperative that individuals cease to smoke and structure a healthy diet to ensure their lungs are as efficient as possible 
Image

Rehabilitation

Pulmonary rehabilitation (PR) is a structured exercise program designed for people living with chronic lung diseases like pulmonary fibrosis 

In DepthFind out more detail.

Read More

You may be more likely to experience poor mental wellbeing or a mental health condition if you are living with a lung condition. This might be because: you find it harder to do the same activities that you did before you became ill you worry that you will not be able to breathe you feel frustrated if you now need regular medical treatment and more support from others, or you worry about the future with your lung condition.

This could then have an impact on how you view your role at work, interactions with your family and friends, and your self-esteem. Having a mental health condition may also affect your ability to cope with your lung condition.

This might mean: feeling anxious about being out of breath, so you avoid exercise being depressed and not feeling able to take your medication, or avoiding social situations and feeling isolated. This creates a negative circle of events; if your symptoms are not well-managed, it could then make you feel worse.

Help Fundraise for PFNI

Help Today with a single Donation

Set up a Regular Donation

Sign up for our Newsletter

Join our Facebook Group

Organise a Fundraising Event

VideoLiving with pulmonary Fibrosis.

Learn MoreInformation for patients of PF.


Pulmonary Fibrosis NI (PFNI) has created information booklets to provide useful advice and knowledge about the medical condition. We suggest that you download and browse through these booklets, where you can find up-to-date facts about Pulmonary Fibrosis presented in a simple and informative way. PFNI's booklets provide detailed information about the diagnosis of Pulmonary Fibrosis, treatment options and support services available. They also provide advice on how to cope with daily living such as eating healthy and maintaining a social life while dealing with the condition.

Managing Breathlessness

View or Download our PDF booklet on Managing Breathlessness with Pulmonary Fibrosis

Mental Wellbeing

View or Download our PDF booklet on Mental Wellbeing Issues with Pulmonary Fibrosis

Oxygen Information

View or Download our PDF booklet on effective use of Oxygen with Pulmonary Fibrosis

General Advice

View or Download our PDF booklet on general advice with coping with Pulmonary Fibrosis

PF General Introduction

View or Download our PDF booklet on our Introduction to living with Pulmonary Fibrosis

Anti Fibrotic Drugs

View or Download our PDF booklet on Anti Fibrotic Drugs for Pulmonary Fibrosis

VideoUsing Oxygen Therapy.

Learn MoreRelaxation Tracks.



Introduction to Relaxation

View or Download the mp3 audio file to help with Pulmonary Fibrosis

Breathing Technique

View or Download the mp3 audio file to help with Pulmonary Fibrosis

Square Breathing

View or Download the mp3 audio file to help with Pulmonary Fibrosis

Passive Relaxation

View or Download the mp3 audio file to help with Pulmonary Fibrosis

Visualisation of a Beach

View or Download the mp3 audio file to help with Pulmonary Fibrosis

A Country Walk

View or Download the mp3 audio file to help with Pulmonary Fibrosis

The Garden

View or Download the mp3 audio file to help with Pulmonary Fibrosis

A Safe Place

View or Download the mp3 audio file to help with Pulmonary Fibrosis

Mindfulness of the Breath

View or Download the mp3 audio file to help with Pulmonary Fibrosis

Body Scan

View or Download the mp3 audio file to help with Pulmonary Fibrosis

Join UsBecome a member today.


Find out More >