Pulmonary Fibrosis NI About Us

The VisionGiving Pulmonary Fibrosis patients and carers a brighter tomorrow.

Pulmonary Fibrosis NI aims to provide support for patients, their families and carers to improve the quality of life of sufferers of Pulmonary Fibrosis in Northern Ireland.

Together we can help Northern Ireland sufferers. You can find out more about our fight for healthy lungs, the support we offer and much more by signing up to be a member today.

Find out more about the condition, what treatments are available to you, as well as practical support available to you. Furthermore we wish to raise awareness of PF, amongst the medical profession, decision-makers and the wider public and to support research into improved outcomes and greater understanding of PF.

Ultimately you will find a supportive place to come together to chat and socialise with a community who can understand what it is like to live with the condition.

Help Fundraise for PFNI

Help Today with a single Donation

Set up a Regular Donation

Join our Facebook Group

Organise a Fundraising Event

About UsOur Team.

Pulmonary Fibrosis NI was established in 2023 to support patients and families affected by this life-limiting condition. The team works closely with respiratory consultants and specialist respiratory nurses across all five Health and Social Care Trusts in Northern Ireland, helping to improve awareness, provide support, and strengthen connections between services and the community. Through collaboration and advocacy, the organisation is committed to ensuring that those affected by pulmonary fibrosis receive the care, information, and support they need.

Patron

Julie Hesmondhalgh

Chairperson

Tom McMillan

Patron

Julie Hesmondhalgh

Chairman

Tom McMillan

Vice Chair

Pat Gorman

Founder & Hon President

Dr. Eoin Murtagh

Respite Care Coordinator

Una McMillan

Events and Ambassador Coordinator

Ian Simpson

Secretary

Clare Donohoe

Team Member

Dr Nazia Chaudhuri

Treasurer

J Byrne

Ambassador

Clare Donohoe

Ambassador

Karen Crawford

Ambassador

Shauna Lynch

Ambassador

Janet Bamford

Ambassador

Royce Balmer

Ambassador

Donna Cooney

Ambassadors.

Jennifer Ainsfield (Enniskillen), Royce Balmer (Newtownabbey), Janet Bamford (Ballycastle), Donna Cooney (Castlewellan), Shauna Lynch McKay (Dunloy) and Karen Crawford (Randlestown), Abbie Thompson, Lucia Lynch and Andy Oliver.

Help Fundraise for PFNI

Help Today with a single Donation

Set up a Regular Donation

Join our Facebook Group

Organise a Fundraising Event

What we doOur Services

At Pulmonary Fibrosis NI we provide comprehensive support for those affected by Pulmonary Fibrosis. Whether you're newly diagnosed, a long-term patient, or a caregiver, our services are designed to help you navigate this journey. We offer tailored information for new diagnoses, resources for caregivers, ongoing support for managing the condition, detailed booklets and guides and relaxation audio tracks. Explore our services to find the support you and your loved ones need.