The VisionGiving Pulmonary Fibrosis patients and carers a brighter tomorrow.


Pulmonary Fibrosis NI aims to provide support for patients, their families and carers to improve the quality of life of sufferers of Pulmonary Fibrosis in Northern Ireland.

Together we can help Northern Ireland sufferers. You can find out more about our fight for healthy lungs, the support we offer and much more by signing up to be a member today.

Find out more about the condition, what treatments are available to you, as well as practical support available to you. Furthermore we wish to raise awareness of PF, amongst the medical profession, decision-makers and the wider public and to support research into improved outcomes and greater understanding of PF.

Ultimately you will find a supportive place to come together to chat and socialise with a community who can understand what it is like to live with the condition.

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I'm newly diagnosed


Pulmonary Fibrosis NI aims to provide support for newly diagnosed patients >
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I'm living with PF


We can help you and your family on your journey with Pulmonary Fibrosis >
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I'm caring for someone


We are here to support you to look after yourself, so that you can look after others >
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InformationWhat is Pulmonary Fibrosis


Pulmonary Fibrosis is scarring in the lungs. Over time, the scar tissue can destroy the normal lung and make it hard for oxygen to get into your blood. Low oxygen levels (and the stiff scar tissue itself) can cause you to feel short of breath, particularly when walking and exercising. Pulmonary fibrosis isn’t just one disease. It is a family of more than 200 different lung diseases that all look very much alike. The PF family of lung diseases falls into an even larger group of diseases called the interstitial lung diseases (ILD), which includes all of the diseases that have inflammation and/or scarring in the lung. When an interstitial lung disease does include scar tissue in the lung, we call it pulmonary fibrosis.

IPF is a form of interstitial lung disease, primarily involving the interstitium (the tissue and space around the air sacs of the lungs), and not directly affecting the airways or blood vessels. There are many other kinds of interstitial lung disease that can also cause inflammation and/or fibrosis, and these are treated differently. 

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The TeamMeet our amazing staff.


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What is Pulmonary Fibrosis

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Pulmonary Fibrosis Treatments

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Pulmonary Fibrosis Rehabilitation

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Fundraising

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Support for Carers

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Publications

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Help our cause with regular donations or organising a fundraising event!

Make a Monthly Donation
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Practical SupportPuffin Lodge.

Located at Causeway Coast Holiday Park, Ballycastle we have secured a 1st March until early December round lease on a sea-front site. This mobile home will be available for our members to book for themselves and their families to get some valuable precious time with each other or to simply get some time away from caring responsibilities. Use our booking software to reserve your place!

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Find out more about Puffin Lodge >