The VisionGiving Pulmonary Fibrosis patients and carers a brighter tomorrow.


Pulmonary Fibrosis NI aims to provide support for patients, their families and carers to improve the quality of life of sufferers of Pulmonary Fibrosis in Northern Ireland.
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I'm newly diagnosed


Pulmonary Fibrosis NI aims to provide support for newly diagnosed patients >
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I'm living with PF


We can help you and your family on your journey with Pulmonary Fibrosis >
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I'm caring for someone


We are here to support you to look after yourself, so that you can look after others >
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InformationWhat is Pulmonary Fibrosis


Pulmonary Fibrosis is scarring in the lungs. Over time, the scar tissue can destroy the normal lung and make it hard for oxygen to get into your blood. Low oxygen levels (and the stiff scar tissue itself) can cause you to feel short of breath, particularly when walking and exercising. Pulmonary fibrosis isn’t just one disease. It is a family of more than 200 different lung diseases that all look very much alike. The PF family of lung diseases falls into an even larger group of diseases called the interstitial lung diseases (ILD), which includes all of the diseases that have inflammation and/or scarring in the lung. When an interstitial lung disease does include scar tissue in the lung, we call it pulmonary fibrosis.

IPF is a form of interstitial lung disease, primarily involving the interstitium (the tissue and space around the air sacs of the lungs), and not directly affecting the airways or blood vessels. There are many other kinds of interstitial lung disease that can also cause inflammation and/or fibrosis, and these are treated differently. 

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What we doOur Services

At Pulmonary Fibrosis NI we provide comprehensive support for those affected by Pulmonary Fibrosis. Whether you're newly diagnosed, a long-term patient, or a caregiver, our services are designed to help you navigate this journey. We offer tailored information for new diagnoses, resources for caregivers, ongoing support for managing the condition, detailed booklets and guides and relaxation audio tracks. Explore our services to find the support you and your loved ones need.

Help Fundraise for PFNI

Help Today with a single Donation

Set up a Regular Donation

Sign up for our Newsletter

Join our Facebook Group

Organise a Fundraising Event

Walk for Warriors Event - 123 Mile Virtual Walk – 1 Jun – 30 Sep

Walk for Warriors Event - 123 Mile Virtual Walk – 1 Jun – 30 Sep

Walk for Warriors Event - 123 Mile Virtual Walk – 1 Jun – 30 Sep

Walk for Warriors Event - 123 Mile Virtual Walk – 1 Jun – 30 Sep

The TeamMeet our amazing staff.


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What is Pulmonary Fibrosis

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Pulmonary Fibrosis Treatments

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Pulmonary Fibrosis Rehabilitation

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Fundraising

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Support for Carers

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Publications

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Help our cause with regular donations or organising a fundraising event!

Make a Monthly Donation
Organise a Fundraiser

Practical SupportPuffin Lodge.

Located at Causeway Coast Holiday Park, Ballycastle we have secured a 1st March until early December round lease on a sea-front site. This mobile home will be available for our members to book for themselves and their families to get some valuable precious time with each other or to simply get some time away from caring responsibilities. Use our booking software to reserve your place!

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Find out more about Puffin Lodge >